Momentum grows towards a WHA Resolution on rare diseases

This article has been developed and funded by Chiesi Group Rare Diseases.  Inflation and rising public debt are creating barriers for the rare disease community to access the latest therapies. Public healthcare budgets are being reduced, making access to new treatments difficult while stricter evidence requirements further limit availability across Europe. The lack of treatment … Continued

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Rare conditions are individually rare, but they are collectively common. This makes overcoming barriers to diagnosis and effective treatment especially vital. Three and a half million people in the UK live with a rare condition. Many face a long and difficult diagnosis journey, with less than 10% of conditions having a treatment. This presents two … Continued