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Why patient voices can help unlock rare disease treatment breakthroughs

To make a real difference in the rare disease space, pharma companies are driving innovation via partnerships with each other — and with the patients they are aiming to help. Pharma companies working in the area of rare diseases will, by definition, only impact a smaller percentage of the population. Yet, the size of a … Continued
Rare Diseases 2025

Gain insights from the largest orphan drug and rare disease event globally

Join over 2,000 attendees, gain insights from 250+ orphan drug and rare disease industry leaders and connect with over 130 exhibitors at this event. The World Orphan Drug Congress Europe is the largest and most established event globally for orphan drugs and rare diseases.   Experts and industry access The event brings together experts from across … Continued
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Ways to champion people-powered communications in rare diseases

With over 6,000 unique rare diseases1 and limited patient populations, evidence to guide effective care is scarce. How can we create meaningful communications for people living with rare conditions and the wider community? Rare diseases pose unique challenges for traditional communication. Real-world insights, global collaboration and personalised engagement can help address these issues. Listen to … Continued